Sunday, July 22, 2012

And so it begins...

This story starts two days ago, on the morning of Friday, July 20, 2012.


I was still groggy from the anesthesia when the doctor showed me the photograph. "It's...it's not good," he said. I could hear my wife crying but I didn't take my eyes off of the picture. What was I looking at? "That's the tumor," he said, pointing to a glob on the left side of the image, "and that's the rest of your stomach," he said, pointing to the right. I had assumed it was a picture of Cleveland.


You hear stories all the time about someone with a "golfball-sized" tumor on their brain or a "tumor the size of a grapefruit" on their liver. These are the quality, round masses of grim death that the cool people get. My tumor is the size and shape of a spilled puddle of pancake batter, and by the look on my doctor's face it will be the thing that kills me.


Twelve hours earlier, I was sitting in the right field grandstand at Fenway Park with my wife and our two kids, struggling to push the butt end of an Italian sausage down my gullet. I followed that with half an order of fried dough and a trough of sickly sweet lemonade. The discomfort in my throat was familiar, something I had felt for months every time I ate or drank. Whatever I consumed--hot, cold, liquid, solid, spicy, sweet--got trapped halfway down my gaping maw, bringing with it a brief moment of panic, followed by a slow, stubborn downward crawl to my stomach. 


As I sat there watching the Red Sox do their own slow, stubborn downward crawl (to last place), I was actually looking forward to the endoscopy I had scheduled for the following morning. I assumed it would lead to a simple solution--antacids, a pill or, in the worst case, an unpleasant liquid cure--that would allow me to resume my pursuit of even higher cholesterol without the hindrance of a narrowing esophagus.


Actually, that's not exactly the whole truth. I did not assume that the endoscopy would lead to a simple cure. I knew, I absolutely knew, that there was something profoundly wrong with me. I didn't think "cancer" or anything that specific, but I knew something about my body was in crisis. Over the course of those same few months when the throat problems started, I noticed a marked reduction in stamina. At the start of May, I tried to get back on the bicycle to ride off a portion of the pounds I had put on over the winter. The first few rides of the year are always awful but, this time, I could never get over the hump. Even ten miles became an act of torture. After a couple of weeks, I stopped trying. 


Soon I noticed that the walk from the train station to my office, a mere four blocks, was becoming a problem. What used to be one of the more pleasant parts of my day became an odyssey of flop sweat and nausea. And climbing the stairs once I got there was off the table. These days, when the elevator I never used to use releases me on to the second floor, I walk as fast as possible to the bathroom, hoping nobody sees me on the way, so that I can mop my brow with a wet paper towel until my heart rate levels off.


So, in a bizarre way, this diagnosis has given me a morsel of comfort: I'm not out of shape and lazy. I'm out of shape and lazy WITH A TUMOR. 


I should clarify something here. As I write this, I have not yet been officially diagnosed with cancer. A biopsy was taken and, within five days, it will be the final word on the matter. But the doctor, with a frankness that I genuinely appreciated, did us the courtesy of eliminating any painful false hopes and made it clear that we are dealing with a malignant tumor here.


My wife and I both independently Googled "stomach cancer" in the hours that followed. For my wife, this was a terrible mistake that led to an enormous amount of sadness. For me, at this moment, I consider it the best thing I could have done. There is no way one researches stomach cancer and comes away with even an iota of false hope. And I am strangely at peace with how the odds are stacked against me which, if I ran a casino, might read as follows:

It's not cancer. All we need to do it cut out most or all of my stomach: 100-1


It's cancer, but we caught it early and it hasn't spread. If we cut out all or most of my stomach and start chemotherapy, I have a shot: 25-1


I'm fucked: 5-2


It turns out that it was a picture of Cleveland. My stomach is fine: 10,000-1

Next step: In two days (one day after my 41st birthday), I take a CAT scan to see if whatever I have has spread.



5 comments:

  1. Josh, you're right-the Internet is horrible but I would have done the same thing. I'm really shocked at the moment for you, but I'm gonna put myself in the believers category and believe you can pull this one out. I know you haven't seen Ray or I in some time, but we don't go many places-mostly baseball fields and reception halls. If you need anything, we can be there. Please tell Cindy this.

    Love,
    Tina Vassil

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  2. Oh man, Josh. What awful news. I wish I had more to say. But this completely sucks. Your wit and openness to deal with things head-on has not changed, I see. :) I'm really impressed with your approach and will be reading this to see how are you doing and what you all need from us.

    ~Katrina (sorry to be signing with my blog. I think it's my only account online.)

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  3. Thanks for sharing, Josh. Keeping all the good thoughts I can for you and yours.
    Bev
    (Ada's Reiki friend)

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  4. When that tumor comes out, you have them weigh it. That does not count as weight loss, buddy, as you get back into tip-top shape in the coming months! We'll see you soon - love to the whole family! Amy Belger

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  5. The odds on it actually being a picture of Cleveland are WAY more than 10,000-1! Idiot.
    Love, Uncle Matty

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