Wednesday, August 1, 2012

Shallow thoughts

Perfectly safe

I had a PET scan last night at about 10:30. The technician, after explaining that I was about to be exposed to an amount of radiation that would give Karen Silkwood the vapors, tells me this: "It's perfectly safe. But don't go near your kids for at least six hours."


"Perfectly safe" is the new "incredibly toxic".


On food and Fox

Naturally, the events of the past two weeks have me thinking a great deal about my mom (for those who don't know, she passed away from pancreatic cancer a couple of years ago). As I was sitting as still as possible during the PET scan, I remembered that my mother, while in the late stages of her brawl with cancer, would spend her days watching the Food Network (though she couldn't eat) and Fox News (though she was an even bigger pinko, socialist, commie liberal than I am). It never occurred to me to ask her why, but I think I understand it now: as the end drew near, she took comfort from the fact that she would soon no longer have to breathe the same air as Guy Fieri or Sean Hannity.


Thing One and Thing Two

One of the hardest parts of this process, of course, is in ushering two twelve-year-old kids through it. Sam, whose cognitive disabilities make it difficult to know how much of this he understands, periodically buries his head into my chest while rubbing my belly and saying "I'm worried about you." Otherwise, his energies are spent eating enormous quantities of food and hating Josh Beckett.

His twin sister Sara is a different story. A day after we broke the news to her, she (with the help of Cindy's parents) went to the mall and, with her own money, purchased an array of items with which she has created a sort of portable healing station. Each night, she sits me down by her table, on which she has arranged a series of scented lotions and oils, candles, medicinal herbs, various antioxidants (such as garlic and ginger), and other momentos she deemed as spiritually important (a necklace from my my mother, the satin bag containing the glass I stomped on during our wedding ceremony). She then runs me through the paces of a meditation and yoga session she developed, complete with a soundtrack of singing bowls and Tibetan throat singers.

It's both a sad and proud day when you realize that you're intellectually and emotionally inferior to your own child. What an amazing kid.


So-so news & good news

Interesting developments today. On the down side, my ability to eat solid food is changing and changing rapidly. As recently as last week, I went out to lunch with people from work and easily wolfed down a sandwich and fries. Over the weekend, I noticed that my ability to eat solids was greatly reduced. By this morning, it's clear that solids are completely out of the question. I'll spare you the details of how I learned this.


As luck would have it, we had a meeting with the surgeon scheduled for today. I explained the situation to him and he decided that we need to move rather aggressively. So, the plan now is that I will get a port put in (through which I will be administered chemo) and a feeding tube (through which I will be administered tequila) on Monday. The reason for the feeding tube is that I need to maintain my caloric intake (particularly in the form of protein) in order to withstand the chemo, and I am no longer able to do this through my word hole. All told, this will involve 3-4 days in the hospital.


Shortly thereafter, we'll start some form of chemo, followed by  daily chemo and radiation for five weeks. Then I recover for five weeks, followed by surgery to remove my stomach, part of my pancreas, and some other assorted pieces of plumbing.


Please, everyone, do yourself a favor. The reason I'm in this mess is, basically, heartburn. I've had a low level of heartburn and acid for years. It was never anything that a couple of Tums couldn't handle, and certainly nothing I ever felt required a doctor visit. I ignored it. Now I'm screwed. Please, if you have those symptoms, learn from my mistake. 


7 comments:

  1. she is an amazing kid. she has amazing parents. that she understands the power of ritual and nurturing both is not surprising

    (hello, gorgeous wedding that married both two amazing people AND two religions STEEPED in cultural markers and ceremonies. hello mom and dad who walked with grace and dignity through some VERY hard years of surgery after surgery for little babySam and then, faced the fact of fierce cancer in Ada with the same grace and dignity)

    Josh, i know it's not so much, but, the boys and i send all kinds of love to you and cindy and sammy and sara.

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  2. josh, it's the same feeling i had many years ago...remember,as ye reap etc etc...much love, dad

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  3. josh, i don't know you but i am a friend of matt's. you are just as funny as he. i love your sense of humor even at this crucial time. please keep writing. i am sure it will help you and be a source of comfort to your family and friends. sounds like you have an amazing and very wise daughter. i believe in the power of healing. stranger things have happened. i would watch as many funny movies and tv shows as you can. and i would definitely put NJHW in that category. and no, i don't know how teresa walked in those shoes in the beach parking lot. lol back to my point, laughter is the best medicine. take and thanks for sharing with us. you and your family are officially in my thoughts and prayers. healing hugs, paulette

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  4. Josh - I'm another person that you don't know directly. Teddi and my mom Esther were best friends since before I and your father were born so I've known the Getmans for a long time. My heart broke when your dad first told us the news. All I can tell you is that many many Kaplans and Goldsmiths are praying for you and thinking about you, EVERY DAY - how powerful is that! As a writer, I know how powerful it is to write your way through this. Please know that lots of us are reading and caring. Much love.

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  6. As always, you have managed to describe this ordeal with total candor, a human touch, and a braveness that I have seldom seen. You are in my prayers every night, and also my nightmares! Jeff .... I need another list, ,,,,Can you get the prices changed for the sale,,,, All night long!!!
    Jeff

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  7. Josh - I know it's been a couple of decades since we last saw each other, but I wanted you to know that I'm sending lots of positive energy to you, Cindy, and your family. Know that you are in the thoughts of many people. And that your blog makes me laugh out loud. Keep laughing!
    ~ Laura Carini Smolcha

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